Neurologist

Yesterday we went to see an neurologist and didn't get good news. On Monday Evelyn will have a lumbar puncture. They will be testing the pressure in her spinal cord as well as doing some blood work.

I will be perfectly honest....I'm completly freaked out. Daniel and I feel like we are on a 3 week episode of House. Where is our House? At this point the neurologist doesn't think that the virus caused Evelyn's eye to turn in. She really thinks there is some underlying cause such as to much pressure or a nervous system disease.

So basically we will be doing test after test to start ruling things out. Right now that is the only way to find out what is going on. The doctors just don't know which is really hard on us because you expect your doctors to know what is wrong and to cure it. Not knowing whats wrong with our 1 year old daughter is killing me.

So we ask you to pray for little Evelyn on Monday...I'm pretty sure this procedure will be painfull. Pray for Daniel and I to have the strenght to get through this. And most importantly pray for Evelyns Doctors and that they will be given wisdom.

Crazy Eyes

So I'm finally getting around to posting again. With work and doctors visits, this week has been crazy. I finally got some pictures of Evelyn and her crazy left eye. I have to say the pictures don't due it justice. It looks much worse in person. Lately, Daniel and I have been calling Evelyn Crazy Eyes. Daniel perfers to call her cross eyed, but I don't like that. Below are some pictures of Evelyn this week and her crazy left eye. You will probably notice the rash on her face. Apparently, Evelyn's body decided to go though all the symptoms of a virus...first runny nose, cough, eye crossing, and now rash. Hopefully it will be gone in a couple of days. Lets just pray that she doesn't do this with every virus she gets.

Eye's Recap

Since we are near the end of the week, I thought I would recap on how the last two weeks have gone.

In the last 11 days Evelyn has seen some kind of doctor 8 times. We have visited our pediatrician 3 time (one-year check-up visit, cold check-up visit, and blood testing). We have also visited at ophthaimologist 4 times where she has had lights shined in her eyes, eyes dialated twice, and all kinds of 'fun' eye stuff. And finally, to Presbyterian Main Hospital for an MRI.

The poor thing is just tired of seeing doctors, but there is only more to come. Evelyn is currently taking a steroid and antibotic drops for her eye. She will continue to take these until the redness goes away (which its begining to fade). We have begun patching her eye for short periods of time. The doctor would like for us to try to do this for 2 hours a day.

Next week we go back to the opthaimologist to check on her progress. We also are going to see a neurologist. Hopefully we will also get good test results back from the blood they took today.

Once again...thanks to all of you for praying for us and thinking about. We will continue to update you on Evelyn's progress.

Red Eye

Yesterday we went to see the eye doctor again because Evelyn's left eye is now red in the outside corner. When the doctor stepped into the office and say Evelyn's eye...her reaction kind of scared me. Apparently its red on the eye muscle and she doesn't know that is causing it. Its strange that it became red after her eye crossed.

So we now have evelyn on steroid and antibotic eye drops. She gets it 4 times a day and we get to see the eye doctor every day until it clears up....ahhhhh. I'm getting tired of seeing doctors and it looks like this is only the beginning. The doctor wants Evelyn to have some blood work done to make sure nothing is out of wack. She also wants her to see a neurologist if the redness doesn't clear up.

I though when we found out that Evelyn didn't have a tumor that we were ok...just maybe an eye patch or something. But I guess I was wrong. The eye doctor was so stumpt by her eye yesterday that she called her partner that has been a pediatric eye doctor for 21 years and he said that he has never seen this before. They resorted to looking on the internet.....I can look on the internet!!!!!

So it looks my daughter is going to be a human lab experiment until they resolve the problem. Please pray for Evelyn as I'm sure she is confussed and tired of seeing doctors. Also, pray for Daniel and I as we deal with not knowing whats going on with our precious little girl.

Negative MRI Results

Can you believe it...we already have the results and they were negative.

We had the MRI today and spent a couple of hours in the hospital. Our pastors Daniel Hodges and Joe McGrew had lunch with us and kept us company at the hospital. Thanks Guys! All went well and we are home.

When we were leaving the hospital, the nurse told us that Evelyn would be tired and cranky for at least the rest of the day. Well, that didn't happen. Evelyn fell asleep in the car ride home but woke up ready to go. She played and talked until about a few minutes ago. So she went from 2:30pm to 9:00pm without a nap. Wow! She's done this a few times before but only when we are out at a gig for my husband, not at home. She is finally tired and sleeping.

The Jackson's game over this evening and brought dinner....thanks Jacksons.

It's amazing how much better I feel knowing that our little daughter doesn't have a brain tumor. Now we just have to see what we can do next to help her eye recover. We go see the doctor tomorrow to look at the redness in her eye...hopefully we can get some questions answered too.

Thanks to our family, friends, co-workers, Kinetic, and hospital workers for all your support and prayers. Evelyn seems to be doing fine for now...we will keep everyone posted on how her eye heals.

MRI

Evelyn will have her MRI tomorrow at noon.  We will be at Presbyterian Main at 11:00 am and we should be home that evening (it's an out patient procedure).

Thank you to everyone...family, friends, co-workers, and Kinetic for all your support and prayers. I will keep you all posted on how tomorrow goes and the results.

Cranial Nerve Six Palsy

So last night I couldn't sleep. I thought long and hard about whether to post this or not. But in the end I decided that this blog was originally created for my daughter in hopes that she would look at it some day. Secondly, it's for me so I can look back and remember when things happen. So here I go....

Wednesday of this week I noticed Evelyn crossing her eyes when I picked her up after work. I didn't think much about it. So that night we went to one of Daniel's gigs. We weren't planning on staying long since Evelyn had a runny nose and cough. But she was just having so much fun that we stayed. While there we were all joking about Evelyn's eyes. So we figured that she probably just learned how to cross them today and was having fun doing it.

Thursday, Evelyn kept her left eye crossed most of the day and I began to worry. When Daniel got home, he said I should take her to the doctor for her cough and have them just check her eyes too.

So Friday morning I called the doctor and asked to speak to a nurse. I explained to her about the runny nose and cough. She thought it would be best for us to come in to make sure she didn't have bronchitis or pneumonia. I also told her about Evelyn's eyes. She didn't think it was a big deal, but since I was already going to be in...the doctor could check that to.

Friday afternoon we went to the doctor's office. The nurse immediatly noticed Evelyn's eye and was concerned. I wanted to tell her "See....so I'm not crazy." but I didn't. She took her temperature, which Evelyn didn't have one. The doctor came into the room and once again immediatly noticed Evelyn's eye. The first thing he said was "She didn't look like that on Tuesday!" Tueday of this week we had her 1 year check-up. Finally, I didn't feel like I was a crazy person. So this eye thing really just happened over night. He check her lungs....and basically said she has a virus. Then he said he wanted Evelyn to see an ophthalmologist. So he went to the front desk and asked them to set an appointment for Evelyn next week. Well, about 15 minutes later one of the front desk ladies came into the room and said "You need to see this ophthalmologist today!" She gave me directions, etc and Evelyn and I were on our way.

Ok....so here I am in the car, driving to an ophthalmologist that is in Belmont, and not knowing exactly what is going on. Once we arived, we were immediatly seen by the ophthalmologist. I was not ready for what was about to happen next. She asked me all kinds of medical questions and then started playing with Evelyn's eyes. Shining lights in them, turing the lights on and off, trying to get her to track things around the room, etc. Then she decided to dialate Evelyn's eyes. Evelyn wasn't fond of the eye drops, but was a real tropper playing in the lobby for 30 minutes while the drops worked.

After her eyes were dialated, the doctor looked one more time at her eyes (lights, tracking, the whole bit). Not fun for mom who had to pin her down. Then, the diagnosis came. I'm sitting in a chair with Evelyn in my lap. The same chair that all of you have sat in before when you go to the eye doctor. The ophthalmologist looks me and says "We need to schedule an MRI." I look at her in shock. She continues to explain that the MRI will rule out the tumor possibility. Immediatly, my brain began to go crazy...tumor...what?

So here is the deal....Evelyn has Cranial Nerve Six Palsy. Basically its when the six nerve stops working. The six nerve helps control the lateral movement of the eye. And since Evelyn's isn't working, her left eye can't move from one side to another. Her left eye is suck towards the inner part of here eye and makes her look cross eyed.

There are two main causes of Cranial Nerve Six Palsy. One, the virus she has caused it. In that case, it will most likely go away in 6 months or so but we may have to do some things to help it like a patch. The other main cause is a tumor. This is why the doctor wants to do an MRI, to rule out the tumor option.

So early next week (probably Monday or Tuesday), we will go to the hospital for Evelyn to have an MRI. Then we just get to wait for the test results. Most likly this has just been caused by the virus. But there is still that small chance, which is why we are doing the MRI.

So we just ask that all of our family and friends to be thinking about Evelyn and praying for her. We will keep you all posted on the results of the MRI and her progress.